Congratulations to Muscular Dystrophy Association’s Marketing and Communications team as they've been named one of OnConferences Top 50 Marketing Teams! “We’re genuinely grateful to be named one of the OnCon Icon Top 50 Marketing Teams,” said Morgan Roth, Chief Marketing Officer, MDA. “This recognition belongs to every colleague at MDA who pours their heart into connecting with our community every day. It’s not just about crafting campaigns or raising awareness—it’s about listening to families, sharing their journeys, and finding creative ways to turn their voices into calls to action. MDA's commitment to putting people at the center of everything we do is what makes our work meaningful and impactful, and we’re proud to keep driving that mission forward.” Congratulations to all our colleagues in this category! View the full list of winners here: https://lnkd.in/gj898G5H #OnConIconAwards#OnConferences #MarComm #Marketing #Communications
Join us Tuesday, October 15, from 4–5:30 pm ET for an MDA webinar on Independent Living with Shannon Wood, MDA’s Director of Disability Policy, and Amber Bosselman, Certified Disability Life Coach. Learn about tenants' rights, housing accessibility, advocacy efforts, and resources for independent living. Register for free today here: https://lnkd.in/eddx2gfK
MENTORS NEEDED: Join Muscular Dystrophy Association’s Mentorship Program! This five-week virtual program connects young people living with a neuromuscular disease to mentors from a variety of career fields such as business, education, law, science, technology, and more. As a mentor, you will lead participants through a real-world project related to your field while also sharing your higher education and career experiences. Mentors must be at least 22 years of age and established in a career. Experience working with youth with a neuromuscular disease is preferred. DEADLINE: Apply by October 18 https://lnkd.in/eYQBs9P9 Special thanks to our program supporter General Motors.
Accurately diagnosing #MuscularDystrophy involves a careful review of muscle weakness patterns, family history, and symptom progression. Healthcare professionals at #MDA’s national network of Care Centers specialize in diagnosing and treating muscular dystrophy. These experts offer the guidance and care plans needed to manage symptoms and maintain independence. Learn more about this network of specialized care: https://lnkd.in/eJ2QCmT
As #MuscularDystrophy progresses, some activities of daily living can become challenging, and many people living with muscular dystrophy may lose the ability to walk. To address these challenges, #MDA provides critical resources along with access to expert medical care to help people live stronger and more independently. Learn more about the MDA programs that make a difference every day at MDA.org #MuscularDystrophyAwareness#30DaysOfStrength
On Tuesday, September 17th at 12noon ET we invite you to join Edgewise Therapeutics' Joanne Donovan, Chief Medical Officer, and John Wing, Executive Director of Medical Affairs for a spotlight on Becker muscular dystrophy; an understanding of disease progression, and a potential novel agent to protect muscle. The latest hashtag#Becker hashtag#MuscularDystrophy natural history data shows that once functional decline begins, individuals with Becker continue on a trajectory to irreversible muscle loss. Edgewise Therapeutics is investigating a novel approach designed to protect muscle in Becker and continues to support the community through its clinical program and advocacy initiatives.
September marks the start of National Muscular Dystrophy Awareness Month! Throughout the month, MDA will host various events & initiatives to advance research, care, and advocacy, all in support of empowering the neuromuscular disease community to live longer, more independent lives. You can make a difference—support the ‘30 Days of Strength’ campaign by donating today: MDA.org/30days #MuscularDystrophyAwareness #30DaysOfStrength
ADVOCATES TAKE ACTION: The Pediatric Rare Disease Priority Review Voucher encourages drug companies to develop treatments for rare pediatric diseases by offering a priority review voucher for future drug applications. This voucher speeds up the review process, helping bring treatments to market—and to patients—faster. However, this crucial FDA program will expire on September 30 unless Congress reauthorizes it. We need your help to urge Congress to extend this vital program. Take action with MDA by contacting your representative in just a few clicks: https://lnkd.in/eu-ZEZ3b
Join us Tuesday, August 27 and Wednesday, August 28 from 5 - 8pm on both dates for the MDA Next Steps Seminar for newly diagnosed hashtag#ALS patients and their families. Topics will include medical care, equipment and home modifications, mental wellness, financial planning, and more. Expert clinicians and members of the ALS community will provide insights, guidance and support in Q&A sessions. Register free today: https://lnkd.in/e4HTTWbg Thank you to our webinar supporters, Biogen, Mitsubishi Tanabe Pharma America, and Reinsurance Group of America, Incorporated.
Submit your abstract by August 9 for an opportunity to showcase your research at the American Society of Gene & Cell Therapy and MDA’s upcoming 1.5-day event, Breakthroughs in Muscular Dystrophy. The event brings together leading researchers and clinicians, like keynote speakers Carsten Bönnemann, MD and Louis Kunkel, PhD, from the #neuromuscular disease community to discuss cutting-edge genetic therapies and technologies for #MuscularDystrophy. Taking place Nov. 19-20 in Chicago, Breakthroughs in Muscular Dystrophy provides presenters with opportunities to contribute their latest findings and insights on #musculardystrophy. Submit your work here! https://lnkd.in/gsE-ptS7
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