MDA’s MOVR Data Hub is helping change the future of neuromuscular disease research. By providing valuable genetic insights and tracking how these diseases progress, MOVR is helping researchers explore new treatment possibilities and improve health outcomes for people living with neuromuscular diseases. Learn more about MOVR here: https://lnkd.in/eRvYxCRE
#RareDiseaseDay is recognized around the world on the last day of February to raise awareness about rare diseases and the experiences of people living with them. This February, we’re highlighting the unique aspects of #neuromuscular disease in diagnosis, care, and research. Join us in spreading the word and helping raise awareness by sharing this message with your friends and colleagues! #MDA #MuscularDystrophy #ALS #Neuromuscular #MedicalResearch
For 75 years, the Muscular Dystrophy Association has been a pioneering force in #neuromuscular disease research, care, and advocacy. Today, we proudly launch our 75th-anniversary campaign with the debut of our new PSA, Legacy. Impact. Momentum. This milestone celebrates the progress made possible by families, researchers, clinicians, volunteers, donors, and partners who’ve supported our mission.💙💛 Watch the PSA and join us to create a brighter future for people living with rare neuromuscular diseases. Learn more at https://lnkd.in/egSWiMYs MDA75.org hashtag#MDA75 #RareDiseaseDay #MuscularDystrophy #ALS
Join us on Tuesday, January 28 from 3:30pm to 5pm ET for a free live virtual MDA Webinar: Care and Planning Resources for Adults with Neuromuscular Disease. Lakelyn Hogan Eichenberger, Ph.D., from Honor and Home Instead and Katie Fields, College Outreach Coordinator and Disability Inclusion Consultant at the Starkloff Disability Institute, will review common work accommodations, explain how to obtain, and navigate benefits such as SSI/SSDI. They will also discuss transitioning to a higher level of care as an adult including home health care long term care and skilled nursing. This webinar is free but registration is required here: https://lnkd.in/e8peQJV3
🌟 MDA Summer Camp Registration is Now Open! 🌟 We are thrilled to announce that registration is officially open for both campers and volunteers for the 2025 MDA Summer Camp! This year marks a special milestone for the Muscular Dystrophy Association—celebrating 70 years of transformative summer camp experiences and 75 years of MDA’s unwavering commitment to families living with neuromuscular diseases. MDA Summer Camp offers children and young adults living with #MuscularDystrophy and related #neuromuscular conditions the opportunity to experience life-changing activities—whether in-person or virtually. It’s a place of independence, self-confidence, and lasting memories. As Matthew Plummer, MDA Board Member and former camper, reflects, “MDA Summer Camp was where I first experienced independence, gained confidence, and learned the importance of self-advocacy—skills that have shaped the trajectory of my life.” Whether you are looking to create lasting memories as a #volunteer or empower a young person in your life, there are countless ways to get involved and make a difference! Join Us for the 'Best Week of the Year' - read more here: https://lnkd.in/e7iAEewp REGISTRATION: 🔗Camper Registration here: https://lnkd.in/e7xRGvAb 🔗Volunteer Registration here: https://lnkd.in/eWFUXidy #MDA #SummerCamp #DisabilityInclusion
BREAKING NEWS: The U.S. Department of Transportation (USDOT) has finalized its landmark rule to ensure safe and accessible air travel for wheelchair users! This milestone was driven by the powerful voices of advocates, including the Muscular Dystrophy Association's Accessible Air Travel Campaign. At MDA, we are proud to celebrate this victory alongside our community, as it represents a monumental step forward in ensuring safe, dignified, and inclusive air travel for individuals with disabilities. Here are some highlights from the rule: ✅ Faster de-boarding assistance for wheelchair users. ✅ Enhanced training for airline staff to prevent injuries and damages to wheelchairs. ✅ Onboard wheelchairs on most flights. ✅ Transparent cargo hold size information for travelers with mobility devices. ✅ Clear policies for repairing or replacing mishandled wheelchairs. Let’s continue this momentum to improve travel accessibility for all! Raise your voice with us and sign up to advocate at MDA.org/Advocacy. Learn more about our #AccessibleAirTravel campaign: MDA.org/AirTravel. #DisabilityRights#Accessibility#Inclusion
🌟 Thank you to our incredible Muscular Dystrophy Association community for being a true #LightOfHope for families living with #neuromuscular diseases! Because of your support, people of all ages diagnosed with muscular dystrophy, ALS, and over 300 related neuromuscular diseases are living longer more independent lives. This moment from MDA Summer Camp says it all—our amazing campers, volunteer counselors, medical teams, and MDA staff, make unforgettable experiences like this possible. Your kindness and dedication inspire us every day. Thank you for your #GivingTuesday donations and support! 💙💛
🎉 Happy #NationalPhilanthropyDay! 🎉 Today, we celebrate and honor the generosity of our incredible community 💙💛Every donation, volunteer hour, and act of kindness makes a difference in the lives of people living with neuromuscular diseases. Thanks to you, we’re able to fund groundbreaking research, offer critical support, and empower families with the resources they need. Together, we're moving closer to breakthroughs in treatment and care every day. Join us in celebrating the power of giving by making a donation today! MDA.org/donate
The #MDA Engage Symposium is coming to DALLAS, Texas on Saturday, November 9 from 10am to 3:30pm CT at the Renaissance Dallas Hotel. We’re bringing families, medical professionals, and the local community together to connect and learn. Dr. Susan Iannoccone from UT Southwestern Medical Center and Dr. Daragh Heitzman from Texas Neurology will co-chair the event and share information on advancements in treatments for people living with amyotrophic lateral sclerosis (ALS), Duchenne muscular dystrophy (DMD), Becker muscular dystrophy (BMD), myotonic dystrophy, ultra-rare neuromuscular diseases, as well as research and clinical trial updates for all neuromuscular diagnoses. Tips for daily living including nutrition, exercise, and transitioning to adulthood will be included. This one-day educational event is FREE. Lunch will be served. Register today at https://lnkd.in/eKU57CXx. Special thanks to our sponsors Mitsubishi Tanabe Pharma America and Sarepta Therapeutics
Now available on-demand! Celebrate hashtag#NationalDisabilityEmploymentAwarenessMonth by tuning in to MDA Quest Media’s panel discussion on the benefits of inclusive work cultures for jobseekers and employers. Hosted by Mindy Henderson, Vice President of Disability Outreach and Empowerment, MDA, esteemed panelists include Donna Bungard, CPWA, Senior Marketing Accessibility Program Manager, Indeed for Business; Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L'Oréal; Stephane Leblois, MA, Chief Community and Programmes Officer, Valuable 500; and Theo Braddy, Executive Director, National Council on Independent Living. Watch now: https://lnkd.in/eeyB4SsD
Check out your Company Bowl for anonymous work chats.
